Neurology

E and I met with a fantastic neurologist, who I am certain is about the first Dr to have actually asked questions and then listened to my answers. He checked everything, he asked everything, it was fantastic and an immense contrast to our usual appointments where every communication feels like a struggle.

I won't go in to every detail - we were with him for quite a while - but the end results were that he wants E to have an MRI on her brain and more blood tests to check and make sure things look ok, plus rule out certain issues. He also wants to try to push for her to get regular speech therapy and was appalled when I told him about our previous experiences, I'm not holding my breath though so unless we get some solid proof of an appointment then I'll still be taking E back to the Play And Language drop in next month.

Next up he wants her to have follow up hearing checks, this is because after her grommet insertion she was given a final audiology appointment to see if they had done their job, and when the results were good she was simply signed off and I was told to just keep an eye out for her hearing to deteriorate and then start the process again if it does. This is something that fills me with fear because of course her language skills mean she can't tell me, so it's a total guessing game.

He also wants some kidney and bladder function checks done as after I told him of a recent failed attempt at potty training E, he seems to think her pattern of urination is a little unusual for her age.
Lastly we also left with a referral to Oxford for an ENT appointment as the neurologist noticed how huge E's tonsils are. It's something I noticed a while ago, she snores very loudly and coughs and chokes at night and this could be the reason.

I'm really eager for the appointment letters to start rolling in but I expect it to take at least a few weeks. Hopefully we can forget about things for the last few weeks of August at least. Come September I'll be visiting pre-schools for a look around, we had planned to send her back to her original nursery but come to realise that a government setting is going to be way better for her.

I also finally got contact in contact with portage who will be coming to see us at home in early September for a little assessment to see how they can help. All positive, but I'm still finding it very overwhelming. E of course takes each appointment as a new day, she is used to being poked and prodded, I just wish she didn't need to be.