Friday, 25 December 2015

Christmas blues

Christmas Day and E has no idea. She knew there were gifts and she was happy for them, despite being overwhelmed by having to try to open them. She didn't make it through our dinner together as she was too exhausted to eat and to top it off she has acquired a nasty nappy rash due to teething for the first time in a year. I'm just having one of those "it's not fair" days and I need to come here when that happens!

We had another failed attempt at the head MRI a couple of weeks ago, only this time much worse. The sedative they gave E just wasn't enough, she managed to fight it and stay half awake. She thrashed and hit out and cried and moaned. 
Traumatic day doesn't cover it. They made us wait, so much waiting while she screamed and threw her lifeless limbs around, they topped her up but she still refused to sleep. Torture almost.

We've had 2 salt appointments, both just half an hour of talking about doing what we are already doing.

Pre school visits, as I finally managed to find somewhere hopefully suitable - though I still have my reservations, but I'll see how it goes. 

The first week of Jan will be hard, with pre school full morning, MRI under general anaesthetic and more useless SALT.

It's supposed to be such a happy season and in part it has been, it's just slightly tinged.