Paediatrician appointment a couple of weeks ago was ok, rushed and typically uncaring but ok. I asked about a few things that had been on my mind but felt like none of it mattered to her.
I got to read the neurology appointment summary which for some reason still hadn't been posted and I also got to find out that her genetic testing came back clear. A relief.
I asked about an eye test due to her eye squeezing and scrunching getting more frequent, I also commented a lot on the various differences when we're with a group of other toddlers and the paed said she'd put us forward for a 1hour play session where they assess her developmentally. I'm angry it takes me saying certain things for her to suggest these, why not do these things from the beginning?
She assured me the MRI referral was going through and it'd just be a matter of time. Here we are still waiting.
In the mean time I still hadn't heard from SALT so contacted them only to find out I just hadn't received the summary letter. They posted it again and I was assured E is now at the top of the waiting list, we should hear "soon".
Last week E had a check up audiology appointment to see if her grommets are still in place, thankfully they are and her hearing is still good. While she was there the audiologist noticed her scrunching up her eyes and asked about it, I mentioned that we are waiting for an eye appointment and also that we are still waiting for speech therapy and she was so shocked with how slow everything is that she was kind enough to write these things in her summary. She sent this to us and to the GP and paediatrician and our copy arrived 2 days after the appointment - this is what a great health care worker looks like! I'm hoping this will help speed things up but who knows anymore!
We still haven't heard from orthotics about an assessment either.
It just all feels so ridiculous, I don't mind waiting - I just want to know there's something at the end, something definitely happening. The portage lady wasn't able to visit 2 weeks ago so it's been rescheduled for Thursday, I have a hundred questions ready, about pre school, wheel/pushchairs and disability.
I just want to see a bright future, but with all this worry and struggle it's very foggy.
