My eye is furiously twitching as I sit here enraged after finally getting through to someone at Stoke. The ophthalmic appointment we have been waiting 2 months for has not even been put through, they will 'chase it up' they say. I'm at my limit, I'm done.
E had physio a couple of weeks ago, a reassessment. While the physiotherapist was nice, telling me he doesn't think E should be falling any more than a normal child - then 20 minutes later stating she has weakness in her hips along with her extreme hypermobility and low tone and giving us exercises to do with her - make's me think he's as ridiculous as all the other professionals, we're returning in 6 weeks to no doubt get signed off.
We couldn't attend the recent short notice MRI on Halloween week as poor E had developed an awful chest infection and was too ill. Rescheduled it for the 2nd December, the day after she finally has her orthotics re-assessment.
I'm having a huge task in finding her a suitable pre-school at the moment, everywhere either has awful reviews or just don't want to offer the extra help to a child with ASN. I'm booked in to view 2 places next week and double crossing my fingers than one of them will be perfect.
It's like every tiny thing is a struggle some days. We drove 10 miles to join in with an ASN group this morning only to be told the dates had changed and it was on last week and next week. Honestly, nothing is easy.
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