Also no sign of the letter the speech therapist told me we would get.
E had an orthotics appointment last Thursday which I had made as an extra because I was so unhappy with the last appointment.
This time my husband came and sat quietly listening to the fobbing off and patronisation the ortho threw at me like he always does, but then piped in about how disgusted he is that we have no help. The ortho seemed shocked that someone actually opposed him, it was great! He still kept on trying to throw more blurb at us but my husband had legitimate questions, like why can't we have piedro boots again instead of having to buy our own. Why can't we see an OT and what happens when she outgrows her pushchair and we can't carry her around.
Ortho said we had to make a choice wether to reside her to a wheelchair in which she would go backwards with progress or to keep pushing her, this was like a red rag to us as it's clearly not what we want, nor what we were implying! She would just need it for longer walks which she cannot physically do, why would we want to stick her in a chair needlessly?!
He then said we absolutely could have piedro boots again, which was the opposite of what he told me last appointment.
After what felt like half an hour of back and forth he said he would book her in for a longer assessment appointment with himself and a senior orthotist so they can properly observe her. Why this hasn't been done previously I don't understand because the room we meet him in is too small to observe E do anything in!
I've been annoyed about the lack of physio support so visited the GP for a re referral, it'll probably be a waste of time but at least we will have tried.
E's next paediatrician appointment is next Wednesday, I'm going to ask about moving to the nearer hospital and what on earth has happened to all these referrals we were promised, feeling apprehensive about it.
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